This is a cup of coffee and a biscuit type post.
Have you ever wondered what behaviour characteristics are common to a lot of disabilities? Many problems, such as Foetal Alcohol and Attachment Disorder, Pervasive Development Disorders and Language Disorders which are common in Adoption have more pronounced issues along the same lines, but these are things that we should all keep in mind when we are dealing with vulnerable and sensitive children.
You need remember that not all vulnerable children act like vulnerable children and may act aggressively. It is our job as adults, not to judge every child by the impossible standards set by children who are not within the special needs arena.
Once a child attends school, the issues and problems that they face increase by startling amounts. Suddenly they are faced with the sector of society that many of them want nothing to do with in life, but are forced into inclusion. There are some children, and some situations where inclusion works, but the extent of help within our school systems for these children is just not good enough in many cases.
If we add the pressure of social acceptance and the pressures put upon them by teachers who want them to meet academic targets, we can see that it is easy to ask too much of children who are not mature enough to deal with it.
Behaviours that can be seen regularly with many of these disabilities are spread across the spectrum, and one or two of these put together is not going to be recognised as a disability. When we are seeing lots of them together, warning signals should be sounding in parents, teachers and friends heads to get help for them.
You don’t have to listen to me to tell you how many children are being failed by our education system due to costs, you can ask any teacher on a day off with a dry white wine in his/her hand.
I have heard people on social media, ranging from the ridiculous to the sublime and making all sorts of accusations about the people who say they should not be drinking alcohol. Well, l can tell you, that life with a foetal alcohol child can be sheer hell for everyone concerned.
Remember this post when you think about picking up a glass of wine once you know you are pregnant. The only thing the medical profession can agree on is that they DON’T know how much alcohol might affect any child. From that, I read that it could be one glass or it could be 10 glasses a day every day. All children and their tolerances are different.
Contrary to common belief, most foetal alcohol children are probably not born to mothers of raging alcoholics. Most are likely born to women who think that a few glasses of wine regularly won’t do any harm. Sadly, those women tend not to admit having the glasses of wine when they are pregnant and they underestimate it to doctors. Foetal Alcohol Effect as a diagnosis, I suspect is one of the least diagnosed conditions that there are out there. I can see that most of them are diagnosed as having other conditions that are much more socially acceptable to talk about.
Nobody should hide behind that. Every mother knows if she drank alcohol when she was pregnant. If your older children have many of these symptoms, then think seriously about what you are trying to get in place for your children. Pretending it is ADHD when it is Foetal Alcohol might not get them the help they need, and if they have both conditions, then they are really going to struggle. And don’t read into this that every ADHD diagnosed child should really be FAE because that would be very very wrong.
Being diagnosed as foetal alcohol effect – which does not have the facial symptoms – is not socially acceptable though, is it?
Who is going to admit it to a doctor, and how many doctors are going to bring that up with a parent? It is the responsibility of the parent to swallow what they did, accept it and get their children the help that they need – before it is too late. This is the list that applies to a certain lovely little lad that I know with foetal alcohol effect. There may be more symptoms, but I can only tell you what I know about.
On the surface, unlike the children with Full Foetal Alcohol Syndrome who are much more obviously affected, with more profound special needs, the foetal alcohol effect children look unaffected. Many of them seen to have good speech patterns, they tend to learn to read and write easily although they often struggle with the comprehension, and they tend to be able to make their daily needs perfectly well-known.
- ADHD is a common side effect of Foetal Alcohol. They are not the same thing.
- Very young children with FAE are very high needs and over demanding. They are often the kind of children that even at the age of 3 +, you cannot leave them in a room long enough to have a pee.
- Problems with school work and learning academic work, tending to be struggling understanding concepts.
- Difficulty making sense of some commands that are given.
- Speech and language problem at times.
- Difficulty controlling impulses. Rather like not being able to put the brakes on something and charging ahead without thinking.
- Short term memory issues. Learns concepts and then forget them again.
- Under developed conscience. Does not see how what they do might have an effect afterwards.
- Doesn’t see the point of having to adhere to rules.
- Struggles to deal with feelings of anger or inadequacy and may react with rage.
- Any anger from anyone else may mean they react the same way.
- Easily influenced and usually keen to please people which makes them very vulnerable.
- Extreme reactions to being told no, not today, not getting their own way. In most cases it is far and above the reactions of non foetal alcohol children. Even in mild cases, it could show as being overly stubborn.
- Low self confidence and high drive to be accepted and may take the blame for things to be popular. May also struggle to tell the truth and be used as a scapegoat by other children as their short-term memory makes them forget the sequence of events, and nobody believes they can’t remember something that happened 30 minutes ago.
- Teachers lose patience with them as they learn something, then a few weeks later may forget it.
- They often turn into perceived bullies as other children often taunt them when they learn the weakness, and the Foetal Alcohol child then gives the extreme reaction to the situation and gets punished instead of helped. The other children know that by the time they get back to class, the FAE child will struggle to get the sequence of events right.
I taught a young lad (Secondary) with FAS a few years ago. He was a lovely, generous boy who tried harder in class than many of his contemporaries. Often, he would do better in classwork than others, too.
He was polite, kind and gloriously tactless – often announcing which girl looked prettiest that day across the classroom.
He had a learning support assistant with him through each lesson, of whom he was very fond and relied on for little but vital things like keeping his pencil case and coat with him at all times.
Unfortunately, due to cuts, his learning support assistant was made redundant. The young lad then got into the ‘wrong crowd’ who delighted in how easily led he was.
Because of these two factors, he was moved to a special needs school – not because he couldn’t handle the work, but because mainstream school seemed to offer more social challenges that he wasn’t able to meet by himself.
When I knew him, he was the loveliest boy you could imagine. It broke my heart to think of how he suffered because of his mum’s actions when he was in the womb.
Because of this, I never touched a drop of alcohol whilst pregnant – seeing what it did to such a lovely boy just broke my heart every day.
So few stop to think what “might” happen. I get sick of those who say, I drank all through my pregnancy, and “such and such” is fine, or it’s a load of rubbish etc etc. I wonder if I will speak to them if their kids end up falling behind in class and struggling with lessons, whether they “might” have managed better if mum hadn’t drank alcohol in pregnancy. I don’t care about the mums who complain about people who complain about their drinking in pregnancy, but i do care about the poor kids they are having.
That lads story is quite common, and horrifically sad. Soo many of these kids in prisons and taking the flak and consequences of things they didn’t initiate, or didn’t have the ability to withstand the strong personalities who took over their lives. He was lucky in that he was moved to a special school. Most of the time, these kids are left to suffer without a diagnosis, and to muddle their way through. It’s no wonder a lot of those children end up in a bad way as adults, or “disowned” by their mothers when they are too much work. Working with them does break your heart. I wish some of these mums swigging their bottles of wine would go see some of these children before they drink when they are pregnant.
Having a drink when pregnant was just something I would never have considered. How can a mother live with themselves if they can harm their baby in this way.
I never touched a drop when pregnant with any of my lot. I was one of those unlucky mums whose morning sickness started immediately and therefore had early warning. I’m not a big drinker anyway, never have been, so going nine months plus without alcohol was no biggy.
However, I was rather anaemic during most of my pregnancies and it was recommended that I drink a pint of Guiness a day….by my midwife. It seems to be standard practice in some areas to recommend this during mid/late pregnancy and to breast-feeding mothers who are anaemic. I didn’t take this advice, but I know many who did. Who can you trust if not your midwife?
Yikes I wonder how many kids have been affected by that tale down the years. It doesn’t bear thinking about. Ok, Guiness has 0.3mg Iron in a pint depending on where you look for the information to a maximum of 1.1mg per pint. A teensy egg yolk has 1.1mg. Weetabix has 4.5mg Iron for each biscuit, so 2 weetabix gives you 9mg in total. You’d have to drink a heck of a lot of Guiness to match that.
powerful and though provoking stuff! I am lucky enough to have felt so sick for the first 3 months I couldn’t touch alchol if you had paid me! Natures way of ensuring I was good! Only the odd v small glass after that. Don’t think anyone would drink pregnant after reading this!
I like to think that’s the bodys’ whole purpose of morning sickness – to make sure the mothers don’t eat or drink things that would affect the foetus at the most vulnerable time (well I can dream).
I work with some kids with FAS. The effects can be devastating. There are so many undiagnosed kids out there. It’s frightening. Your post very informative. X
It’s awful isn’t it. I am good at being able to spot FAS/FAE ones from the ADHD ones now. I wish the doctors were, but you have to live with them to get good at spotting other ones.
What about the fathers? If they were heavy drinkers what effect does that have?
Nobody knows for sure. Tests in animals showed that there can be a link to sperm damaged by alcohol. Alcohol is a risk. It’s up to every person to decide if they are willing to take that risk. Sad for the children born to parents who took the risk and it didn’t work out. It’s a birth defect that is 100% preventable and any parents who do have children with FAS / FAE should be shown some compassion to help get them through what has happened, but they are ridiculed instead, made to feel bad, when some had no idea that drinking could affect their foetus so much. Most won’t admit it and their kids suffer with no help and often being labelled the bad kids. Very sad for all involved when it happens.