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Staying Safe at Christmas

We shouldn’t really have to say this, should we?  Only we do….

Fire kills, and Christmas is really a time where we roll out decorations and lights for trees, that we use rarely, then bundle them up and squish them back into the decorations box until the next year.

Christmas-1000.png

There are lots of hidden dangers around Christmas, and for this year, I wanted to highlight the main ones for my readers.

Christmas Lights Safety Checklist

  • Only buy lights with the British Kitemark.
  • Buy from a respected source, ie a large chair or reliable name.  Do not buy lights second-hand, or from a dodgy bloke in a pub.  You have been warned.
  • If your lights are a few years old, treat yourself to new ones if you can.
  • Before adding your lights to your lovely new tree, check each one for signs of damage and change bulbs if needed.  If the cables are worn, replace the lights.
  • Switch OFF the electric before removing or adding a new bulb.
  • Use a surge protector.
  • Don’t use indoor only lights for wrapping around the top of your garage outside etc.  Keep indoor lights for indoor only.
  • Watch out for the trip hazard that cables along floors can create.
  • Switch off the lights when you go to bed, or when you go out.
  • Christmas lights are not toys, neither are the fibre optic trains and santa sleigh’s out there.  Don’t let your kids play with them.

Christmas Fire Awareness

  • Extinguish candles before you go out, and before you leave the house.  Candles really shouldn’t be left unattended at any time.  When you have them lit, make sure they are out of drafts and away from soft furnishings and curtains.  Keep candles, lighters and matches out of the reach of children.
  • Keep decorations well away from heaters, fans and lights.  It’s tempting to hand a star from a chandelier, but just don’t do it.  Don’t.
  • No matter how tempting it is, don’t put on your Christmas dinner, then leave the house.  Cooking needs to be kept watch over.  Kitchens are dangerous places.  Keep dish towels away from hobs and hot ovens.
  • Check smoke alarms and carbon monoxide detectors.  Are they working correctly?  If not, replace them, or change the batteries until they are.
  • Do not, and I repeat, do not, overload sockets.  With all those new gadgets and whole families in one house, all eager to charge them, stop and think…..is it worth the risk?
  • Be careful with Christmas costumes.  Some materials are very flammable and can catch alight easily.  Know what fabric you are wearing and your risks.  Making a stir fry using an open flame on a hob, but wearing a flammable material, is a recipe for disaster.

If you can think of others I’ve missed, please add them in the comments.

 

 

 

 

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Have you heard of a cord blood bank? Should you donate blood?

I suppose you can say I was on alert after seeing BBC Doctors, where a nurse pretended to have placenta in a bag for cooking, when it was in fact chicken liver for pate.

It was only a couple of days later when I saw the headline…that simply said something like “Why do we use cord banking?’

It had me beat.  At first, I imagined some form of rope, or fibre, or perhaps even some airy, arty, cloyingly sweet name for something as simple as a blood sample from the doctor (what can I say).  I even wondered if it was something to do with some kind of blood for a speciality dish.  We Scots are used to black pudding which is made from ox blood, so although I don’t eat it, my interest was piqued.

Initially, it was a bit of a let down to find out that it’s simply storing blood from the placenta of a new born baby, within one minute of the baby being born, otherwise the blood congeals and is no good for future use.

Then I read further and discovered a whole new world of donation, that helps save lives, and I’d never heard of it.

Donations and Storage

The NHS has a cord blood storage bank.  Yes it does, strangely enough.   You can even register to donate on their website.  It seems a fairly simple thing to do.

Private v Private Storage of Cord Blood

Private

Knowing that there is a difference between public and private storage is very important.  The NHS blood bank is public, and operates in a different way.

In the private banks, donors store the cord blood of their babies, in the hope, that if someone in their family ever becomes sick with a disease that involves stem cells, and is treatable, there’s already a store of blood that can be used, and more importantly, one that is a match.

As with any private service, fees are usually charged yearly for storage after the original bank deposit.  The cord blood banking cost can run into thousands, so it’s not something to be taken lightly

Public

Our good old NHS Cord Blood Bank, collects from public hospitals and is free.  I can’t figure out just how many hospitals can use this service, but for those who are interested in donating, it would be worth calling their hotline to find out.

With a public donation, like any other blood donation, it’s given for the greater good of our fellow mankind.   The blood can be used for anyone who is a match for that tissue type and is not stored just for use by the donating family.   Although the donation is stored for ever more, if it has been given to someone else, then it turns out the child whose blood was donated needs it for themselves, there is no guarantee that it might still be available.  There would, however, still be the possibility for a further match in the public bank.

What Can Cord Blood Be Used For?

As well as cancer of the blood, it can be useful in cases of bone marrow problems, blood disorders, such as sickle cell anaemia, or where an immune system is not doing it’s job, or where waste products in the body are not properly being broken down.

Do We Really Need To Bank Cord Blood?

The possibility of our children needing a stem cell infusion of blood might be rare, but are people actually going for this, given that it is written about as painless and easy to do at the point of birth?

I didn’t give birth to my boys, and I’d no idea this whole thing even existed, but I suspect that if it was available when I was giving birth, I’d be sorely tempted, just for the possible benefit to some child somewhere that might actually need some cord blood in the future.

It’s not something that is ever going to be a consideration for me, but I thought it was worth sharing on my blog, as if even one person donates cord blood as a result of me raising a little awareness, some child somewhere might survive a miserable health condition in the future.

Find out more from the NHS Cord Blood Bank.

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Halloween Is Coming

This often fills my heart with dread.  Standing out in the freezing cold for ages, while little cherubs run amok through the streets, knocking on doors and telling jokes to get sweeties.

My middle boy is now a teen.  He’s the same height as me, and takes a size 8 shoe already.  He STILL wants to go door to door, asking why the chicken crossed the road, and the house owners look at him with staring eyes, as the answer is always ‘to eat his supper.’

Our kids call it Trick or Treating nowadays.  Americanism has taken over, in more than just Halloween, but the kids love dressing up, so who am I to spoil their fun.

Halloween

This year, his disability is embarrassing him, and to be honest, at times, the rest of the family too.  Our embarrassment is for him, as we’re used to his antics and inappropriate comments and funny hand actions, and sometimes, just sometimes, the unbelieving looks from strangers get through, and he understands he’s made a big faux pas.

We try to head it off by only visiting houses where people know him, but with the pumpkin outside the house rule, he can take off to join the tots at the home of someone I don’t know.  All I can do is raise my eyebrows and try to send a telepathic signal to the disbelieving recipient of the chicken dinner joke, that makes them laugh, despite knowing it’s not even a joke, let alone a funny one.

Half a decade of trying to get him to change his joke has come to nothing.  This year, I’m not even going to try.

The best bit about Halloween, is when it’s over….  We can retreat back inside our front door, while he dumps his bag of sweets on the lounge floor and tries to count them out.

Recapping some of the Halloween, here’s Devils Food Cake Recipe from a couple of years ago too.

Enjoy your spooky evening.

Happy Halloween

Devils Food Cake Halloween Nigella 570
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Does how you live affect your chances of being burgled?

In collaboration with Legal and General.

It’s that time of year again, when burglaries start to rise, as thieves know most of us are likely to have some Christmas presents lurking around, but how vulnerable do we make ourselves?

When I was about 14, I came home from school, to find our front door open, and a pair of socks discarded on the steps in front of the door.  My neighbour was standing at our door, making sure I didn’t go in, just in case someone was still inside.  It was my first experience of a direct theft, that wasn’t just some other child nicking my stuff at school.

To make matters worse, the only thing we could find that had actually been taken, was my wages from my Sunday job in a shop, that I’d thrown on top of the piano before going to school.  Easy to find, and easy to pinch.

What’s worse, is that years later, I found out that a neighbour had seen the burglar enter our garden and then leave, but hadn’t come forward.  She KNEW who’d burgled us, but kept schtum.  The robber is long dead now, but the feeling of anger at someone taking what I’d worked so hard for, has never left me.

What also angers me, is that we’d left ourselves wide open to being an easy target for a burglar.  In spite of living one floor up, in a flat that shared a front door with another flat, we had no lock on the shared outside lobby door.  That was rectified pretty quickly.

Our lack of decent security, had meant the burglar could walk into the shared lobby and close the door behind him, leaving him all the time in the world to break down the inside doors.

Vintage Key in Sea

Our inner door was also too weak.  We’d never experienced a burglary before, neither my mother, nor myself, and as two females living alone, we really should have.  We had a flimsy yale lock on the inside door, which must have been easily shouldered through, as the damage when he broke in, was very slight.

So, for us, adding a new lock and changing the totally inadequate one on our flat door, made us feel safer for the next few years, and I’m much more safety conscious than I would have been, had we never been burgled.

When friends of mine leave their doors open when they’re at home, mine are always locked, unless it’s the patio doors when we’re out in the garden.  Ingrained habits are hard to break.

Legal and General have written an excellent article that helps us to understand hour our lifestyle can affect the safety of our homes.  It’s well worth a read for anyone who is unsure about thinking seriously about the potential for risk.

Having teenagers myself, it hadn’t hit me that a house with teenagers, actually increases our risk of being burgled, but it makes perfect sense to keep anything valuable out of sight, and not store things in the master bedroom.

Stay safe everyone, as as the run up to the festive season begins.

 

 

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Garden Vegetables

I thought you might like a look at some of our vegetables from the plot this year.   We’ve had a bumper crop, including broccoli, cabbage, potatoes, leek, onion, carrot, cucumber, green beans, swede and strawberries.

Mr Scottish seems to have taken growing veges in his stride, helped along by middler of course, who needs something to keep him occupied, especially at weekends and school holidays.  I think this is a major success.

Here’s a small selection of what we’ve prepared for tonights supper, along with the cucumber and courgette, which is very likely to be turned into some sort of jam.  We’ve had a massive courgette crop which has been difficult to use up, so friends and neighbours have all had plenty.

It’s been a lot of work, but we’ve got a few sacks of potatoes, and the strawberries were turned into jam long ago.  Our raspberries weren’t so successful, and our tomatoes were a non starter this year, but there’s always next year.  Rhubarb is always a chore for us, as apart from crumble and jam, nobody else will eat it.  Most of that has been given away.

This was well worth starting.  It pretty much halves our fruit and veg bill during May to October.

Cabbage
Vegetables
Courgette Cabbage and Potatoes
Courgette
Potatoes
Swede

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My Solution to Pathetic Broadband – Hello 4GEE Mobile Wifi (Osprey 2)

Update:  Inserting the sim on Osprey 2.

This seems to trouble some people.  I can only show you how mine is inserted.  Locate the little cover with the sim image on the side and gently pull it open.   With the sticker on the back of the Osprey, I’ve taken a picture of which way to put in the sim.  If your Osprey is sitting with the EE logo on the top, contacts will face up, and if it’s sitting with the smooth back of the Osprey upwards, it’s the EE sticker on the sim on the top.  Hope this helps a bit.   Your sim needs to be exactly in the middle, so pop it in gently so that you can remove it if you miss the centre slot.  When it slides in easily, use your nail, or a pin to push it in until it feels like it’s clicked.

IMG_1968 IMG_1967

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Our broadband is dire.  I don’t like to shout too loudly, as some of my neighbours have it even worse than we do, but if there’s more than one person hooked up to the WiFi, there’s no hope of EE3getting much of anything done.

At times, our speed isn’t much more than the old dial-up.  To make matters worse, if the broadband goes down, there have been no 3G or 4G connections to fall back on with a phone.  I’d tried 3, Vodafone and O2, but at least with O2, we get calls.  We couldn’t even get that with Vodafone.

I know some of you probably think we live out in the sticks, but although we’re a village on the outskirts, we’re still actually classed as being in Aberdeen, and not the Shire.  Yes, that’s right, we’re in a City and the broadband needs a good talking to.

We’ve been promised faster internet for years, but after an extended slo-mo outage, I decided to get myself a hold of one of the EE Mobile WiFi units.  To be honest, I expected very little from it, as our trials for other networks have been so poor.  I switched it on, fully expecting it to have to go back, then I sat it on a window ledge, and what do you know – I got three bars of 4G!  I think my neighbour heard me whooop…
EE Osprey 2 2

I can’t move it around too much, as there only seems to be a few spots where the signal is this good, but I can join it, just like any other hub.

I’ve seen the reviews that said the unit was quite large.  I don’t know what they’re reviewing, but I don’t find it large at all.

There is a mini version of the Osprey 2, but that does not allow you to charge a phone if you’re out and about.  I can see my youngest wanting a mini for Xmas though.

As for the data plans…  I do find them slightly on the expensive side, so I’ll be restricting my useage on the gadget, but it’s finally reassuring to know, that when my internet dies totally, I can still actually use my phone to get online….or turn off automatic updates on my computer, to save data.

Anyway, you can choose pay as you go, or sign up for monthly payments.  If you’re using it a lot, then monthly would be the way to go.  This is the first time I’ve tried a mobile WiFi gadget in my house, and there isn’t an alternative.  I’m just happy to see a light flashing anywhere, on any gadget that connects to the internet.

Easily pleased aren’t I?  Perhaps I should just get a life outside the internet….

EE Osprey 2 1

In the box:

  • EE4GEE Osprey 2 Unit.
  • Quick start guide.
  • Top up card.
  • Sim card.
  • Little carry pouch.
  • Charging cable.

Disappointingly, the cable is ultra short and there is no plug.  I found that a bit inconvenient.

For surfing the web, I have to say, it is much preferable to our BT Broadband at present.

In Use

I’ve popped it in my bedroom, where I’ll use it to check mail, surf a few web pages, social media, and some low data hungry things.  Our WiFi doesn’t work well up there, even with a booster, so moving onto this for the evenings will make me very happy indeed.  Now, I’ve just got to work out how long I can make my original 6GB of WiFi last for.

With one machine under our belts, I doubt I would actually swap this pay as you go sim for a monthly one, as the units are free on a monthly package.  If I decided to tie myself down to a monthly payment, I’d simply get them to send me a new unit too.  Possibly the mini as a Christmas present.  It would be the same price overall.

Surfing on 4G is very much faster than with our broadband.  I went for a walk, popped the Osprey into my pocket with my phone and was able to download messages and read the news on a local park bench when I stopped for a breather.  It’s the first time ever, that I’ve had any connection in our village.  I doubt I will do without this gadget in future, unless O2 get their finger out and give us 4G too.

Littlest is simply thinking about having WiFi on his travels.  When we go away in the van, we tend to get zero signal wherever we go for data, but some people have been mentioning finding EE signals, so if we get WiFi in a place where our phones pick up nothing, I might just kiss the boots of whoever invented these little magic gadgets.  We can connect up to 10 devices to these units, so they’re quite versatile.  I just wish the data was cheaper.

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Is Your Windows 10 Machine Updating Someone Else’s Computer?

If you’ve downloaded Windows 10, and are loving it, congratulations.  Windows 10

I, on the other hand, really do like it, but I found a problem.  After installing it, my machine seemed to be working constantly, and my processor sat at 98% most of the time, with only one program open.  It meant I could hardly do anything without the machine freezing for a minute or two.

I could do very little, as I had no ram left on my slightly ageing PC.

So I did what we all do when our computers temporarily freeze up.  I went looking for what I could find.

Potential For Peer to Peer Updates

Windows 10 will do mandatory updates, but  the really tricky part of this, is that not only can Microsoft then use your download to update the other machines in your network, it could use your broadband to deliver updates to other PC users, wherever they may be, by using a form of peer-to-peer distribution.

I don’t know about anyone else, but our broadband is pretty rubbish as it is.  The potential to lose some, so that someone else can download their updates, fills me with dread…….  There isn’t enough information to say how they will use it, but the wording on the image below is pretty telling.  Make your own decision.

For those of you with superfast broadband, I have no doubt this is a great idea if you don’t mind sharing, but as someone who is stuck on ASDL, for what seems to be eternity, with no option of going faster, finding ways to get my machine nippier is definitely a priority.  On the plus side, Microsoft’s servers would get a break from the pressure of downloading.

I have horrific memories of the old fashioned peer-to-peer stuff of a few years ago, so this did not fill me with joy.

Thankfully, we can actually stop this happening.

Image from Windows 10 Settings Page
Image from Windows 10 Settings Page

Turn It Off

It’s on by default when you download and install Windows 10.

  • Start
  • Settings
  • Update & Security
  • Windows Update
  • Advanced Options
  • Choose How Updates Are Delivered
  • Either:  Choose PCs on my local network OR Click Off to switch off the sharing option completely.

I do have to say though, I am loving the new Start Menu and the options for apps.

And to the potential person/people who I may have downloaded Windows 10 from today, whoever you are, thank you for sharing.

 

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Is it ‘right’ to ban high sugar products?

Ok, I’ve read the hype and the arguments and I have a point of view on this.  As the general consensus seems to have been bashing Tesco for deciding to ban some high sugar products, I thought I should add my balance to the argument.  For the record, this post is not sponsored or in conjunction with any brand of any kind, and is just my opinion.

The conversation seems to be based around the following principles:sugar

  • Tesco banning sweets from checkouts.
  • Promoting energy drinks as a healthier alternative.
  • Removing some high sugar drinks from sale.
  • Sugar Consumption.
  • Obesity.

Banning Sweets from Checkouts

Kudos to Tesco for this.  Every journey begins somewhere.

Ok, there is still a learning curve, and perhaps individual store managers have a say on what does get promoted, but on the whole, this is a great initiative.  I’m not convinced that dried fruit has a place here either, as the sugar content is still high, and our bodies treat all carbs as sugar, but if it’s a choice between candy and dried fruit, isn’t it better if children pick the dried fruit (and adults for that matter).

Promoting Energy Drinks as a Healthier Alternative

I guess we could say that this is actually true in some respects, though perhaps it would be better if we tried to work with retailers on what’s acceptable and what is not.  After all, we all have differing opinions.  As a diabetic who also has to manage someone else’s diabetes, I’d much rather deal with aspartame than high sugar, but if I can get rid of the aspartame, I will.  I don’t think we know enough about it to know how safe it is long-term.

It’s not the shop who is at fault with the sweeteners, it’s ours.  There are alternative ways to sweeten products, but we choose to buy ones loaded with aspartame.  I know I’d rather drink an aspartame product than an added sugar one, but that’s just me.

The caffeine element is not so easy for me to rationalise, as the drinks say they are not suitable for children.  Checkouts are very much driven by impulse last-minute buys by everyone in stores and I find plenty of shops that sell high caffeine energy drinks to kids.

Even my local shop does it.  It’s not illegal, and a couple of glasses of most brands of cola, or a few cups of coffee will add up to the same caffeine intake, but does not gather such vitriol as energy drinks.

I don’t like the promotion, but I can see where it came from, and to some extent, it applies to almost all shops that sell energy drinks and fizzy stuff.

Removing some High Sugar Drinks from Sale

I am really struggling to find the downside of this…..

I think people are perhaps confusing the removal of drinks with added sugar, with the removal of products that are high in sugar naturally.

In the Telegraph, David Beardmore, soft drinks buying manager for Tesco explained that it is part of a ten point plan against obesity, and that from September, they will only sell no-added-sugar drinks in the childrens juice categories.

Read that again.  no-added-sugar…..

It’s seems to have nothing to do with the brands of Ribena, Capri-Sun, Ribicon, or anything else.  It’s about removing products which are loaded up with extra sugar.  That’s sugar that nobody needs in their life.  Ever.

He also states, that most of the suppliers are supportive.

The manufacturers are free to modify products to contain no added sugar, and I suspect they would be stocked once again.  It wouldn’t be a bad thing for us to develop a less sweet tooth than we currently seem to have as a species overall.

Sugar Consumption

Look at the back of almost every processed product you buy, and in there will a label that tells us all about the carbohydrates.  Most of us tend to scan the list and take a look at the sugar content, forgetting that all carbs are treated as sugar in our bodies.

Let’s face it, even soups, pasta, ready meals and all sorts have sugar bumped into them.  Many bloggers make their meals from scratch, so we tend to consume less sugar, but on the whole, many of us, and our kids, eat plenty added sugar foods overall.

Sugar is addictive.  Apart from the lucky people who eat to live and treat food as fuel, the rest of us derive large amounts of pleasure and satisfaction from eating food, and food tends to taste better with fat and sugar added, even if we don’t always know why we like the taste.  Crucially, sugar is one food ingredient that we don’t need at all.  We get zero benefit from it, and it adds absolutely nothing to our diets.

If someone is a T1 diabetic and needs a sugar injection, there are many other choices to have on hand as a quick sugar release.  Added sugar products seem to be overkill, though I admit, it might be easier for a parent to persuade a hypoglycemic child to drink their favourite sugary drink.  The point being, though, that if it’s their favourite, they are more than likely consuming it when they don’t actually need the sugar, and then just topping up sugar levels that don’t need to be topped up.

I use sugar in my recipes for sweet things, but often reduce the content that other people recommend.  I suspect few of us would add sugar to our full meals, so why manufacturers think we need it in those products, completely flummoxes me.

Yes, I would like to see sugar content reduced, and products taken off the other shelves, but I’m old enough to know that a single step can eventually turn into cracking a mountain, if someone is determined to carry through their convictions.

Obesity

Yes, I’ve read and listened to the arguments for other products listed in stores that are high in sugar, but those are not solely aimed at children.  The products being removed are directed specifically at children.

We can deny it all we want, but on the whole, kids are getting fatter.  Two of my kids are skinny and one is slim, but he did have a problem for a while, and we’ve managed to wean him off the taste of high sugar products, but like me, he’s an addict and will always have to watch how much he is taking in.

Being fat sucks.  I don’t care how many people dress it up, or say how happy they are with their bodies at a heavier weight, there are few people I would believe.

Along with the difficulty in getting clothes that fit well, there’s excess sweating, stress and pressure on joints, stress on the heart, cholesterol levels, the possibility of Type 2 diabetes, or being shamed and called names in public, at school, or anywhere else.  And those are just for starters.

I have been very fat, and I have been very thin.  I know which version I prefer.  I wish that all products, apart from desserts, had been made sugar free throughout my life.  It would have made my choices so much easier.

As someone who finds it very easy to be addicted to the one thing that also can make me ill, there is no escape from my poison.  An alcoholic can stop drinking and not have to pass another drop across their lips.  A food addict does not have that pleasure.  Every day, they have to face their demons and swallow a portion of what they are addicted to.

And sugar is addictive…. Craving carbohydrates is common, as is the carb coma that can make someone want to sleep after eating a carb rich meal, but at the same time, it’s impossible to ignore the plethora of products out there to choose from.

My Last Words

If a huge retailer can enter discussions with providers of added sugar products, to remove the excess, then I think it is one step in the right direction.

Yes, there are bound to be teething problems, and yes, I think it could have been done differently, but I really do like the principle.

I am hoping that the initiative is built upon and expanded.  I think I’m just pleased to see a large household name start to take responsibility.  The test is going to be whether they can keep it going, and alter manufacturers product ingredient choices as a result.

 

 

 

 

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An Underactive Thyroid

You know how it goes.  I’d get the kids up and ready for school, run the stress gauntlet of breakfast, get them moving, get my mum up and breakfasted, then myself ready for the day.  By 9am, all I wanted to do some days, was put my head back down and sleep for hours.  I ate as little as I could, given that I had terrible cravings, but still gained weight.

It did my head in.

Then…

When I got checked up recently for diabetes, other blood tests were done at the same time.  What that meant, is that I’ve found out my thyroid was blown, and probably has been for quite a while.

Healthy Thyroid

I’m not hugely under at the moment, but it’s low enough that it’s been causing me problems.  I just didn’t know what to look for at the time.

I should have known better as my mother has been underactive for many years, but hers was knocked out as a result of treatment for an overactive thyroid.

Underactive thyroid, or hypothyroidism is easy to miss in the early stages.  I had no idea.  At all.  I knew I was tired, and finding end of the day difficult, although I couldn’t fall asleep, but I put that down to caring for three kids, one with special needs, and two elders with dementia.

The symptoms can be mistaken for other things, so it’s worth knowing what to look out for.  Since I’ve been put on Thyroxine, the pain I had 24/7 in my thumbs seems to have taken a walk off a cliff, leaving me pain-free, but that could also be due to having the diabetes more under control now.  I’m keeping my fingers crossed that it stays like that.

Symptoms Can Include

  • Weight gain.
  • Extreme tiredness.
  • Sensitive to cold.
  • Depression.
  • Slowing down of movement and thought patterns.
  • Muscle aches.
  • Cramps.
  • Dry skin.
  • Brittle nails and hair.
  • Pain and numbness in hand and fingers.

What Does The Thyroid Do?

Our thyroid regulates our metabolism.  The butterfly shaped gland in our necks is responsible for almost everything our bodies.  In other words, the hormones produced by the thyroid are dumped into the blood stream and are necessary for all the cells in our bodies to work properly.

An unbalanced thyroid will interfere with the way your body uses fats, and can make our body cells work slower than normal in hypothyroidism..  I’ve often been given sideways glances when I said that I put weight on around 1200 calories a day, and couldn’t understand why.  No-one ever believes you.  They really do think you’re trying to make excuses for putting on weight, or think you’re just lazy.  Now I know I wasn’t going mad…..

When the cells slow down, so does the heart rate, and can increase the risk of heart disease, increase the levels of cholesterol in the blood and cause fatty deposits to build up in arteries.  For that reason, it’s important to get diagnosed if your thyroid is out of sync.

Diagnosis

Diagnosis is quite a simple blood test, that shows the levels of T3 and T4 hormone in our blood.  The doctor can tell immediately if you have it, by your results.

The Future

As hypothyroidism is often a result of our own immune system malfunction, treatment is usually needed for life.  The drug of choice seems to be Levothyroxine, and I can feel it helping already, despite only having taken it for a fortnight so far.  The disease could also simply be a result of having virus that puts our hormones out of whack, or Hashimoto’s disease, which is often hereditary.

How Can I Stop Underactive Thyroid Developing?

The simple answer is, that you can’t.   Having an underactive thyroid is quite common, more so in women, with around 15 in every thousand women developing it.

Find Out More

Find out more about thyroid conditions at Thyroid UK.

 

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I May Be A Type 2 Diabetic

After a few weeks of checking my blood glucose levels, it turns out I may actually be diabetic.  By saying ‘may,’ I am more than likely simply underestimating the effect.  My blood sugar readings over the time I’ve pricked my fingers regularly, have been appalling.

Blood Glucose Meter

I know some of you are wondering why I even bothered checking my readings, but when you manage someone else’s diabetes, you do eventually become curious about what your own sugar levels are like.  You mostly know my mum lives with us and has dementia, but she also has diabetes, and I have to control that for her through food, insulin and her tablets.  The exercise part is out of the equation as she can barely walk these days.

My awareness of diabetes had been growing due to monitoring her levels, but one day, around the table, I checked my whole family.  My reading was enough for me to begin keeping watch on my readings, and I am now monitoring one of my children who seems to be sitting on the cusp of pre-diabetes but is still healthy and living within the limits.

There are other symptoms of possible diabetes, which meant I had ruled myself out as a candidate.  The books said that people with diabetes lose weight as they excrete the glucose through urine and not insulin helping it into the body’s cells.  For me, that means nothing.  Lose weight, that’s a laugh.  It was, however the one biggest reason that convinced me that my extreme tiredness after eating especially was more to do with my fibro or sometimes a carb coma if I ate potatoes or pasta.

Type 2 Diabetes Symptoms

Only two of these symptoms applied to me, so I wish I had done something about them sooner.

  •  passing urine more than you used to, especially at night.
  • becoming increasingly thirsty.
  • extreme tiredness.
  • unexplained weight loss.
  • slow healing of cuts and wounds.
  • blurred vision.
  • increased or unsatiated hunger.

The Future

Whatever my results end up being, I know that from now on, I really need to be careful of what I eat and how I live my life.

I bought myself a blood sugar meter, but the meter itself wasn’t expensive, however the lancets and the test strips are quite pricey.  I believe that some areas of the UK don’t prescribe them for people who turn out to be Type 2 diabetes, which is either where I am, or where I’m headed.

In any case, testing several times a day is helping me keep an eye on which foods do what to my sugar levels and it can turn up some surprising results.  If I drink a diet fizzy drink, my sugar levels can go up as much as 1 mmol (the measurement of blood sugar in the UK.)  There may be other factors at play, but as a rule, my favourite diet fizz has to be rationed for me now.

Type 2 diabetes can come on very slowly, which mean we might not even notice the symptoms.  I suspect I have built up to this for a long time, and I might have chugged on for another few years before it became an issue at all, but thankfully, I seem to have nipped it in the bud.

Getting Tested

If you are in doubt, visit your G.P for a test, like I just did.  If it is diabetes, then early diagnosis can reduce future problems.  Your G.P is likely to start with a fasting blood sugar test which will indicate your levels where you have had no calories for 8 + hours.  If you are diabetic, your body will release glucose as a result of fasting and will result in levels over 7 mmol.

The interesting one for me has to be the increase in levels of hunger.  It’s something I’ve struggled with for a decade.  Apparently, in uncontrolled diabetes, where blood glucose levels are high, glucose from the blood cannot enter the cells, either with a lack of insulin or from insulin resistance.  What that means, is that bodies of people with uncontrolled diabetes cannot convert that food into energy.  What happens then, is that your hunger levels rise and simply eating more will not get rid of the feeling of hunger, as it will just top up the already high blood sugar.

I am keeping my fingers crossed that my sugar readings lately are just a blip, but deep down, I know there is more going on and that it’s likely I have had this for years.  Whether I sit at pre-diabetes or full diabetes is my issue, and I suspect I will need more tests, but in the meantime, I have a way of checking where I sit.  That gives me more confidence in controlling what I do in my daily life.

I am very early in this journey, but with the help of my blood sugar meter, I hope to get on top of it, but it will mean many food changes for me.

Find Out More

For more information, visit the NHS or DIABETES.co.uk.

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Everyone has a right to be heard. Find out about ACC from the NHS.

Augmentative and Alternative Communication (AAC) describes the things people can use to let their voice be heard.  Just driving along a road, we recognise the signs giving us instructions.  Even most non drivers know what they mean and we can talk about those things to others.Now Hear Me

But what if we don’t have the ability to say what we want in the traditional way, using our own voices and replying instantly?

Imagine if you lived in a world where people couldn’t understand what you wanted to say.  How frustrating would that be?

ACC helps people to communicate with each other.  Some people may take longer to get their point across, or need to use pictures, symbols or technology to say what is in their heads, but we all deserve the extra time it takes for them to be able to say it.

My own special needs son often uses pictures and symbols to describe his emotions as he can’t put them into words.  When he goes to respite and there are more physically disabled children, I’ve seen him use sign language to communicate with them.  It’s a lovely thing to see.

AAC helps people recognise the signs an symbols of life, even simple things like pictures, hand gestures, pictures and the vast amount of technology on the market today.   What works for one person may not necessarily work for another, but they all allow people to share those common goals of understanding and being understood.

The NHS wants to increase knowledge by the public of how 0.5% of our population can be better helped to let their voice be heard.  I think it’s an important thing for us all to be aware of.  Just a little patience and understanding could mean so much to someone who needs a little extra help to get their opinions across.

It’s difficult to put some of this into words, so I’ve added a couple of videos from the Now Hear Me campaign that explain it much better than I ever could.

Listen to Gavid Drysdale talk about using ACC and vocal aids to lead a full life.

Watch Rachel Monk and how her friends and education have grown with the assistance of ACC.

This is the advice from the ACC on what we can do to help and listen.

What can you do?

  • Recognise that a right to ‘speak’ and be ‘heard’ is a fundamental human right, whether through verbal speech, gesture, signing, picture board or high tech device. Communicating is a fundamental piece of who we are and everyone deserves to be given the time and space to do it.

  • Recognise that everybody is different and that we all communicate in a variety of ways. AAC is not a single tool or approach that will help everybody. There is a range, and people who use AAC want others to support them to communicate in the way they find most effective.

  • People who use AAC need you to be patient. Try to make sure you give people using AAC extra time to get their message across even though this can sometimes feel uncomfortable for you. It is ok to say that you would like to check that you have understood a person’s message by asking them a few questions.

  • Address the person, not their carer or anyone else who might be with them.

  • Remember communication is a two way process. It involves information going in two directions – both being expressed and understood. Sometimes people who use AAC to express themselves might have difficulties understanding what you say to them – for example if they have problems with their hearing or interaction skills. It is important to not make assumptions and to ask the person what works best for them to help them communicate with you.

     

     

    Find out more with the NHS.

    Written in collaboration with the NHS for the Now Hear Me Campaign.

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A Little Thing Called Dementia

Dementia 255

It’s the little things that count, right?  Of course they do.

I have two parents with vascular dementia, both very likely brought on by strokes.  Both affected very differently and both with different levels of needs on any particular day.  My dad, in particular is very mistrustful of people, and finds new people very difficult to live with, yet he is in the lucky position of having a lady friend who visits him often and takes him out and about.

My mother lives with us, and while she has her own wee flat in our house, with an area for her lounge, bedroom and a bathroom, she’s become introverted, not wanting to go out or meet anyone at all.  That’s not ideal.

Their support networks are very different indeed.

Good Support for my dad.

In Fife, My dad needed a hospital stay as he lived alone, about a hundred miles from us. There was nobody around him to visit, make meals or help him around the house. He found himself trapped and away from his home, tucked into a mental health hospital on a geriatric ward, despite being able to get out and about if needed.  He is quite feisty and vocal about what he wants, which led to regular meetings and plans for his future decided between social work and health professionals.

He tried going home with carers coming in to cook his meals and help him take his tablets.  It was a disaster as by that time, he was so used to the company, that he couldn’t cope and was back in hospital within a few days.  The hospital was soul destroying as his room held nothing but a bed and a wardrobe.  He had nothing personal, no TV, no outings and it was difficult for his lady friend to visit.  She needed to travel for four hours, to only see him for one hour on each visit.

Flowers

When I decided to dig my heels in about removing him from the hospital and put him into a nursing home, social work (with support of the doctors) had funding in place and transferred him to a home he chose within a fortnight.

The funding assessment will be done over the next couple of months but hasn’t stopped his help appearing almost instantly.  We’re still left with the headache of what to do with the house he part shares with a residential association but that’s neither here nor there.  It will be a pain, but at least he’s somewhere with his own things around him and close to his lady friend, which is all he wants in life.

Bad Support for my mum.

My mum has a ready-made built-in carer.  Living in our house, albeit independently, I am seen as a ready-made carer whether I want to be or not, so she’s had nothing in the way of outside help at all.  It doesn’t help that she’s the type of woman who never complains about anything and just muddles through with us for help.  Even a year post diagnosis, we have still not been assessed by social work for any care she or we as a family might be entitled to, and that’s not without pushing buttons, asking the right people and more.

Being a sandwich carer is a challenge.  I have three kids, one of which regularly enters respite to give us a break, but caring for mum is ongoing too.  She’s finding it more and more difficult to do daily tasks, even to the point of showering, which she can just about manage if someone is in the room, to make sure she doesn’t fall.  She turns her frustration on not remembering things onto herself and wants to hide in her wee flat twenty-four seven.  Her care needs are only going to increase, not decrease.  She gets stressed at the thought of moving anywhere else and I just can’t put her into a home when she could easily be looked after here if someone gave me a little help long-term.

The problem is, that it’s two different budgets apparently.   I don’t know how true it is, but I’m also told that they find it difficult to find carers who would come to where we live so that she could get help with showering and dressing.  She also puts on a brave face and slips into past things to talk about, which makes them think she’s more able than she is.  Don’t ever underestimate someone with dementia.  They can fool people who are not experienced in the field into thinking they’re more capable than they are quite easily.

255255Debenhams-Flowers-1

So, where we are we now, a year down the line, is without an assessment of need done for her, without future prospect of care unless I consider putting her into a home (my understanding which could be wrong) and we are well and truly trapped in the house as she can’t be left alone for any significant length of time with her diabetes.  That means the man is taking the kids away on his own this year.  I can’t go anywhere as nobody else is confident in managing her insulin and sugar levels, and the man isn’t keen on helping her wash and dress.  She wouldn’t be happy with him doing it either.  It’s a little thing called dignity, not having a man see her naked, even if he would simply be helping.

There are personality changes too.  From a woman who for decades, has always told me off and my own kids for feeding the dog scraps at the table, it’s gone full circle.  When my brother’s dog needs babysat, he sneaks under the table to her feet and she surreptitiously slides pieces of food off her plate and slips it to the dog.  The dog is ecstatic of course and the kids highly bemused, though they do struggle on occasion when she’s asked them the same question ten times in half an hour.

What Do We Do?

Not much to be honest.  What else can we do.  The man has to give up time in his day when I visit my dad to help sort out his messes as my mum can’t be left all day alone, and we’ve found pinning notes around the house help her to not keep having to ask if it’s morning or night etc.  We have a note on the front door to remind her to lock it when she opens it to have a look down the street, which she does fairly often.  We were finding the door constantly unlocked, and just a wee note means she sees it every time she closes the door again, and instantly locks it.  Job done.

It’s all about dignity and what we can give them.  My mum is insular and happy to stay in her own space, but my dad wants the freedom to go out and about.  I have to remind myself that when she acts like a child, it’s not personal, but I do miss my mum, the person I used to chat to more than anyone else in the world.  That person is gone now, and the one left in her place is still funny at times, can still tell great stories of her youth and feels sad at the loss of her independence.

I wish I could get her out of the house more, but the only activity days scheme that would have worked has had to reduce its service due to funding cuts.  The waiting list is so long that it’s likely she’ll have passed on before she gets to the top of the list.  I’m quite sad at how little there is out there for her to do unless she’s put into a home.

The constant care part of it all makes me really rethink my own future life and care plan if I make it to be a senior citizen requiring assistance.  I know I won’t live with any of my own boys, but I also wouldn’t want them to have to live with me and lose out on their own futures.

In the meantime, somehow, I have to find carers to pick up some of the work for the future.  If I get it in place over the next year, hopefully it’s done and we have it when she really begins to struggle even going to the toilet, and yes, it’s going to be tough going, but I’m trying.  I just don’t think my trying is good enough though, as she often seems so sad.

I don’t expect comments, so don’t feel obliged to leave one.  Today is my birthday and perhaps that’s what’s making me take stock, looking at another year of caring in the home for someone who is deteriorating weekly.

Today, I feel selfish, so I don’t plan celebrating, but I do have to get control of my life and the rubbish food I punish myself with when I’m stressed.  I must work to get my confidence back.  It seems to have taken one gigantic knock recently and I feel so rubbish at everything I do.

I just wanted to put this out there, it’s cathartic to write our struggles, even if nobody reads them.  Sorry if you’re looking for food and found one of my personal posts.  I know I don’t post heartfelt posts often these days, but hey, it’s a doozy when I do.

Take care all, enjoy your Easter weekends and happy egg hunting.

If you’re affected by dementia in any way and wish to know more, visit the NHS as a starting point.

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